References
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- Agar, M., & Bush, S. H. (2020). Delirium at the end of life. Medical Clinics of North America, 104, 491–501
- Beauchamp, T.L. Childress, J.F. (2013) Principles of bioethics. 7th ed. Oxford University Press
- Brown, P., Franz, J., McGuigan, H., & Watt, N. (2021). Mental Health. In Pryde, N. (Ed.), Enhanced Palliative Care: A Handbook for Paramedics, Nurses, and Doctors (pp. 192–240). Bridgwater: Class Professional Publishing
- Chochinov, H. M. (2023). Dignity in Care: The Human Side of Medicine. Oxford University Press
- Department of Health in Northern Ireland. (2010). Living Matters, Dying Matters
- Featherstone, I., Hosie, A., Siddiqi, N., Grassau, P., Bush, S. H., Taylor, J., Sheldon, T., & Johnson, M. J. (2021). The experience of delirium in palliative care settings for patients, families, clinicians and volunteers: A qualitative systematic review and thematic synthesis. Palliative Medicine, 35(6), 988–1004
- Frankl, V. (1946). Man’s Search for Ultimate Meaning
- Galligan, M. (2021). Conducting holistic pain assessments in patients with cancer related pain. Cancer Nursing Practice. https://doi.org/10.7748/cnp.2021.e1802
- Guidelines and Audit Implementation Network. (2013). Guidelines for Palliative and End of Life Care in Nursing Homes and Residential Care Homes
- Hadley, J.M. (2020). Managing do not attempt cardiopulmonary resuscitation conversations in the community. British Journal of Community Nursing. 25(2)
- Healthcare Improvement Scotland. (2025). Scottish Palliative Care Guidelines
- Healthcare Improvement Scotland: Right Decision Service. (2024). Scottish Palliative Care Guidelines
- Henson, L. A., Maddocks, M., Evans, C., Davidson, M., Hicks, S., & Higginson, I. J. (2020). Palliative care and the management of common distressing symptoms in advanced cancer: pain, breathlessness, nausea and vomiting, and fatigue. Journal of Clinical Oncology, 38(9), 905–914
- Hosie, A., Agar, M., Lobb, E., Davidson, P., & Philips, J. (2017). Improving delirium recognition and assessment for people receiving inpatient palliative care: A mixedmethods metasynthesis. International Journal of Nursing Studies, 75, 123–129
- Hosker, C. M. G., & Bennett, M. (2016). Delirium and agitation at the end of life. BMJ, 353, i3085
- Hospice UK. (2024). Care After Death
- Imai, K., et al. (2023). Visualizing how to use antipsychotics for agitated delirium in the last days of life. Journal of Pain and Symptom Management, 65(6), 479–489
- Kleinman, A. 1988. The illness narratives. Basic Books, New York
- Leadership Alliance for the Care of Dying People. (2014). One Chance to Get It Right
- Lipscombe, S., Dawson, J., & Rough, E. (2024). The Law on Assisted Dying. House of Commons. SN04857.pdf
- Mannix, K. (2021). Listen
- Mehrabian, A., & Ferris, S. R. (1967). Inference of attitudes from nonverbal communication in two channels. Journal of Consulting Psychology, 31(3), 248–252
- National Institute for Health and Care Excellence (NICE). (2015). Care of Dying Adults in the Last Days of Life
- National Institute for Health and Care Excellence (NICE). (2017). Quality Standard: Care of Dying Adults
- National Institute for Health and Care Excellence (NICE). (2021). End of Life Care for Adults
- National Institute for Health and Care Excellence (NICE). (2023). Clinical Knowledge Summary: Palliative Cancer Care – Pain. Accessed 30/08/24
- NHS England. (2021). Ambitions for Palliative and End of Life Care: A National Framework for Local Action 2021–2026
- NHS Wales. (2021). Care Decisions for the Last Days of Life
- NHS Wales. (2021). Guidance for Health Professionals on Caring for Patients in the Last Days of Life – Welsh Language Version
- Nursing and Midwifery Council (NMC). (2018). The Code
- Reed, K. 2025. Katy Smith progress not perfection. Available at: Self Care is Giving the World The Best of You Instead of What's Left Of You - Kathy Smith [accessed 16.02.26]
- Royal College of Nursing (RCN). (2024). Definition and Principles of Nursing
- Saunders, C. (2022). ‘Total Pain’ and emotional evidence at the end of life. Medical Humanities, 48, 411–420
- Scottish Government. (2000). Adults with Incapacity (Scotland) Act 2000: Principles
- Scottish Government. (2014). Caring for People in the Last Days and Hours of Life – Guidance
- Scottish Government. (2015). Palliative and End of Life Care: Strategic Framework for Action
- Scottish Government. (2023). Palliative and End of Life Care Strategy: Aims, Principles and Priorities
- Shanawani, H. (2016). The challenge of conscientious objection in health care. Journal of Religion and Health, 55(2), 384–393
- Sutton, A., Williams, H. M., & Allinson, C. W. (2015). A longitudinal, mixed method evaluation of self awareness training in the workplace. European Journal of Training and Development, 39(7)
- Welsh Government. (2022). Quality Statement for Palliative and End of Life Care
- World of Work. (2019). The 7 Cs of Communication
