Planning ahead
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Planning ahead
Planning ahead
MND is a life-shortening disease. Making plans for adjustment in the future includes end of life decisions – so planning ahead with MND can be emotionally challenging. Conversations with your patient on these matters may be difficult but they do ensure that the wishes of the person in your care are respected.
Webinar: Timeliness
Access the slides from Alison's webinar.
ADD link to Timeliness webinar
Webinar: End of life care
Access the slides from Alison's webinar.
ADD link to End of life care webinar
The Patient Voice: Thoughts about dying and bereavement
This video has been provided by HealthTalk.org.
Audio: Reflections from health care professionals
NICE recommendations
Essential messages
- Timeliness is key to planning as MND can progress very rapidly.
- Advance Care Planning is the responsibility of the whole multidisciplinary team.
- Acknowledging and recording the person’s wishes gives them control of their care.
Useful links
- Advance care planning for MND
- Association for Palliative Medicine (APM). Withdrawal of Assisted Ventilation
- MND Association. Patient information
- MND Association. Professionals Area
- MND Association. EOL Guide
- MND Association. A professional's guide to end of life care in MND
- RCN. End of life care and wellbeing for the nursing and midwifery workforce
- RCN End of Life Resource – Fundamentals of nursing care at the end of life
Neuroscience Forum
We promote best practice for people with long-term neurological conditions and represents the voice of neuroscience nurses and influences policy to improve care for our patients.
Neuroscience Forum